the result of a combination of the common, though frequently denied and
rarely studied, mental and behavioral symptoms of
Parkinson's Disease that include
depression, obsessive-compulsive disorder,
The PD Lexicon
"Ahhh PD cognition - they
should call it
Greg Wasson ~ 05/05/02 MGH Forum, "The Swearing Thread"
Welcome! - and please forgive the disorder as I update this site
for the first time in a couple of years ~ thank you! ~ Carey
Five years have passed since I wrote
Why CLOGNITION? (below).
It surprises me to discover that I would not change
a word today. But I can add several.
The non motor or so-called "secondary" symptoms of Parkinson's (where
problems of CLOGNITION are usually
relegated), are finally getting the attention they deserve from
the PD establishment including researchers, foundations, and
New research shows that exercise is neuro-protective, and
other studies validate a wide variety of approaches to promote
mental health and improved quality of life for PD patients.
The Bad News
frontline general practitioners and neurologists to screen for
psychological, behavioral, and cognitive complications -
especially depression - when a PD diagnosis is made remains
Patients still suffer unnecessarily from undiagnosed or
untreated Parkinson's related mental disorders.
How to Use CLOGNITION.ORG
Click on the tabs along the top of the page to explore:
Information from research
journals and other articles about Parkinson's and depression, anxiety,
cognition, executive function, and other psychological and
Information about coping and improving quality of life, including
exercise, nutrition, sleeping, alternative and complimentary medicine,
and stress reduction.
articles written by people with Parkinson's for people with Parkinson's;
information and news about the emerging importance of creativity to
quality of life and examples of PWP creativity.
of sites of interest to people with Parkinson's disease.
available and of interest to those living in the Pacific Northwest, because this is
where I spend my time!
remains relevant as a clearinghouse for information and
awareness. I hope
you find CLOGNITION.ORG a good
place to find links to useful information from the experts, and
to learn how other People With Parkinson's are coping with
CLOGNITION in particular and PD in
general. You can make your life better - if you arm
yourself with knowledge and take charge of your health care. ~
Drug therapies are available as long as you take the time
to find the right one. PD is an extremely individualistic disease.
Loss of motor control, mental changes, drug treatments, surgical
treatments, diet, exercise – the menu is long, the choices and
Young Onset PWPs present a new public health challenge:
keeping healthy, active, and productive in order to raise families, go to
work, survive for many years as medical science continues to make our
bodies stronger so that we live longer. But our brains have to keep up
with our bodies, and clognition remains a huge but elusive challenge to leading full and healthy
lives. Education and "brain re-train" are necessary, along with more
funding for research in this area.
Access to information is essential to good health and a
well balanced life. PD is tough to live with, balance is difficult
to achieve. Information enables; education gives hope; advocacy increases
strength; and knowledge is power. Take control of your life!
PD is a
tough disease to live with. My words are brave; the reality of my
life is much different. The struggle is daily; hope not always evident. I
am working hard to find the right path. 12/01/02
~ Carey Christensen
Almost anyone who has heard of Parkinson's Disease knows about the
physical symptoms of PD, including tremors, generalized slowness of
movement, stiffness of limbs, and gait or balance problems.
What is less well known about PD is that it
is not the motor symptoms that tend to do the most harm to quality of
life.Clognition coupled with stress is
more often than not the culprit that precipitates job loss and family
There is not much information available
about the effects of
or strategies to cope. Talking with other PWPs reveal the problems
to be similar and ubiquitous, including unpaid bills due to lack of
inattention, and habitual all night computer use. Although the
behavior is "normal" it is far from healthy.
The discovery that
Clognition was normal for PD
sufferers gave me the strength to take steps towards managing my life and
alleviating stress. It’s not easy, and I can’t do it alone.
Counseling sessions with a neuropsychologist plus conversations with PD
compatriots give me strategies to maintain and the motivation to follow
Please drop me a line!
“ Never doubt that a small
group of thoughtful, committed citizens can change the world.
Indeed, it is the only
thing that ever has."
Margaret Mead, PhD,
Mom! Get off the computer!
I'll be just one more minute.