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Focus on Parkinson's Disease & Mental Health |
The PD Translator
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The Written Language and Culture of PD
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The internet provides a wealth of material both inspirational and educational written by PD patients. Having PD gives one a certain perspective easily shared and understood by other "Parkies" but hard to grasp by others. These are links to writings that manage to translate the experience. As David Beresford says in Part I of A Leap in the Dark:
"A dive into these cyber-communities brings one an appreciation of the resources of intelligence - not to mention pain and courage - which generally go unrecognised in everyday life. Exchanging information through email, mailing lists and websites, building a collective expertise and - perhaps above all - providing reassurance and encouragement based on personal experience, the net appears to be bringing a new dimension to medicine. The dynamic behind it would seem to be patients and those close to them - driven by their own imperatives of discomfort, pain and the prospect of death."
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A Leap in the Dark British Journalist David Beresford's DBS Diary in The Guardian, August 13-October 15, 2002 , , , ,
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Excerpt From by Michael J. Fox
Following are threads from the MGH BrainTalk web forum that have been particularly inspirational.
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