CLOGNITION TM

Quality of Life: Coping and Thriving with PD

Why Clognition

Mental Health

Depression & PD

Dopamine & PD

Quality of Life

PD Community

PD Translators

PD Creativity

Washington State
 

Focus on Quality of Life issues: 

 Grassroots Connection & Virtuality

Click here to view the MGH BrainTalk Web Forum thread on "Quality of Life"

Click here for information on the Emory University Health Sciences NIH-funded study on spirituality, holistic health practices and improved Quality of Life for Parkinson's

Artwork

On the Terrace

Pierre-Auguste Renoir

  

NIH Information on Quality of Life and Chronic Illness

NIH Guide: Program Announcements (PAs)
http://grants.nih.gov/grants/guide/pa-files/

 

PA-02-162 QUALITY OF LIFE AND QUALITY OF CARE RESEARCH
http://grants2.nih.gov/grants/guide/pa-files/PA-02-162.html

 

PA-02-111 INCREASING QUALITY OF LIFE IN MOBILITY DISORDERS
http://grants1.nih.gov/grants/guide/pa-files/PA-02-111.html


"Quality of Life"
http://grants.nih.gov/grants/guide/index.html#search

 

NOT-NS-03-015 QUALITY OF LIFE OUTCOMES IN NEUROLOGICAL DISORDERS
http://grants2.nih.gov/grants/guide/notice-files/NOT-NS-03-015.html

 

NOT-MH-02-010 LONG-TERM CARE RECIPIENTS: QUALITY OF LIFE AND QUALITY OF CARE RESEARCH – ADDENDUM TO PA-02-162
http://grants2.nih.gov/grants/guide/notice-files/NOT-MH-02-010.html

 

PA–02-071 INNOVATIVE TECHNOLOGIES FOR ENHANCING FUNCTION FOR INDIVIDUALS WITH DISABILITIES
http://grants.nih.gov/grants/guide/pa-files/pa-02-071.html

 

PA-02-155 INFORMAL CAREGIVING RESEARCH FOR CHRONIC CONDITIONS
http://grants.nih.gov/grants/guide/pa-files/PA-02-155.html

 

RFA-NR-02-001 INFORMAL CAREGIVING RESEARCH FOR CHRONIC CONDITIONS
http://grants2.nih.gov/grants/guide/rfa-files/RFA-NR-02-001.html

 
   
 

 

 

Final Results on Survey on Coping With PD: Creating Happiness & Expanding Quality of Life

 

This survey was based on responses to a thread in the MGH BrainTalk web forum that asked the question, What makes coping with PD easier and your quality of life higher? This was a thoroughly NON scientific survey, although the results along with the thread comments, were passed on to Dr. Alex Troster at the University of Washington. The MGH thread is http://neuro-mancer.mgh.harvard.edu/ubb/Forum71/HTML/007138.html

 

The final results, presented also in graph form below, were as follows:

 

1. Internet: Friends/Info/Medical News

2. Good Humor/Attitude

3. Family/Friends/Caregivers

4. Spirituality/Faith/Acceptance

5. Projects/Hobbies

6. Advocacy/Helping Others

7. Physical Activity

8. Creative Pursuits

9. Support Groups

10. Alternative Therapies/Yoga/TM, etc.

31 votes

28

26

19

18

17

16

12

11

8

 

Answers

Votes

Percent
100                    
90                    
80                    
70                    
60                    
50                    
40                    
30                    
20 '       .     ,    
' . .
10   .       ,       .
, , ,

186 Votes
1.   Family/Friends/Caregivers 26 14%
2.   Support Groups 11 6%
3.   Physical Activity 16 9%
4.   Projects/Hobbies 18 10%
5.   Internet: Friends/Info/Medical News 31 17%
6.   Creative Pursuits 12 6%
7.   Spirituality/Faith/Acceptance 19 10%
8.   Good Humor/Attitude 28 15%
9.   Advocacy/Helping Others 17 9%
10.   Alternative Therapies: Yoga/TM/etc. 8 4%

 

---

 

 

How Do I Cope With PD?

 

I look at beautiful art, like this print by Morris Graves.

 

I hang out with my teen age daughter and listen to Avril Lavigne

 

I keep in contact with my PD internet network of friends

 

I try to find the humor in everything...everyday life as well as the intentional (listen to David Sedaris!)

 

I keep in touch with old friends.

 

I talk to my parents and sister who live in a distant state.

 

I plan fun outings several months in advance to be sure I always have something to look forward to.

 

I play with website design for the sheer pleasure.

 

I remember to listen frequently to the Indigo Girls, for their poetry in song that captures the human condition

 

Just for Fun
 
 

My Personal PD Alphabet

A

B

C

A is for agonist, Ali, amantadine, AJ, advocacy

B is for bradykinesia, balance, braintalk, Barbara, Bill

C is for clognition, caregiver, Carol, Carl, Carolyn

 

D

E

F

D is for depression, dyskinesia, dopamine, disability, dx, dysfunction

E is for Elvis, extra effort, environmental toxins

F is for Fox, forum, friends

 

G

H

I

G is for Grassroots, Greg

H is for hope

I is for Isacson, indigogo

 

J

K

L

J is for Joan, Jaye, Judi, Janet

K is for Kirkland Clinic, Kondracke

L is for leva dopa, lobbying

 

M

N

O

M is for movement, Mike, Millie & Mort, Mirapex, Maureen, Marcie, Mary

N is for NWPF, neuro

O is for off, OCD, Orcas

 

P

Q

R

P is for PD, Parky’s Pipeliners, PAN, Perry, Paula, Pwnkle, Peg

Q is for quality of life

R is for research, Requip, retreat

 

S

T

U

S is for Sinemet, support group, side effects, stem cells, slow

T is for therapeutic cloning, tremor, testify, tulips

U is for Udall, unemployment, unity, used o be, unknown

 

V

W

X

V is for victory, vision

W is for work, websites, walk

X is for executive function, exercise

 

Y

Z

 

Y is for yoga, young onset

Z is for lost zzzzzzzzzzzzzzzzzzzz's

 

 

 

 

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