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The Written Language and Culture of PD

 

Books and the internet provides a wealth of material both inspirational and educational written by PD patients.  Having PD gives one a certain perspective easily shared and understood by other "Parkies" but hard to grasp by others.  These are links to writings that manage to translate the experience.  As David Beresford says in Part I of A Leap in the Dark:

 

"A dive into these cyber-communities brings one an appreciation of the resources of intelligence - not to mention pain and courage - which generally go unrecognised in everyday life.  Exchanging information through email, mailing lists and websites, building a collective expertise and - perhaps above all - providing reassurance and encouragement based on personal experience, the net appears to be bringing a new dimension to medicine. The dynamic behind it would seem to be patients and those close to them - driven by their own imperatives of discomfort, pain and the prospect of death."

Artwork

Philosopher Reading

Rembrandt

Links

Recommended Reading

Click the book to learn more from their publishers

 

NEW- Read LATimes editor Joel Havemann's account of the ambiguity, uncertainty, and indecision of PD drug & treatment maintenance.

 

A Leap in the Dark

British Journalist David Beresford's DBS Diary in The Guardian, August 13-October 15, 2002 Part I, Part II, Part III, Part IV, Part V

 

Peg Willocks' Journal 1, 2, 3, 4 (one of the first things I read when I was diagnosed - extremely valuable)

 

 

NEW! - Murray Charters' "Therapeutic Writing" - fabulous!

 

Janet Paterson on Emotions & PD

 

Excerpt From "Lucky Man" by Michael J. Fox

 

Following are threads from the MGH BrainTalk web forum that have been particularly inspirational.

 

"Detached"

"Emotions and PD"

"Give the dope on how you cope"

"Why Cope?"

"The Swearing Thread"

"It's Just Human Nature, Isn't It?"

"PD and Workplace Accommodation"

"Grace"

 

HOPE, by Hal Newsom

Lucky Man

 

Read a review of both "A Life Shaken" and "Lucky Man" from the LA Times

   

 

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